Aristotle and Joy

I love this quote:
Aristotle: ‘We are what we repeatedly do.’

Eudaimonia – flourishing and enduring joy. I think that’s what we are all looking for.

(Steve – I got your email and will reply soon. You are a very, very brave man! Your strength is unbelievable and inspirational)

Have a great week everyone,
Karen


Depression and RA – It’s worth a read!

SEVEN out of 10 people with rheumatoid arthritis avoid parties because they are in too much pain, research has shown.

And two-thirds decline friends’ dinner invitations due to their condition, the poll on behalf of drugs firm Roche found.

One in three said the illness made them feel depressed and lonely.

Around 690,000 Brits suffer RA and half of affected adults stop working within a decade of diagnosis.

It is an incurable condition in which the body attacks itself – particularly the joints, meaning symptoms are much worse in winter.

Jo Lloyd Baker, 42, who lives near Salisbury, Wiltshire, knows first-hand how challenging RA can be at this time of year.

She was first diagnosed in May 2008 when her children Henry and Elouise were only one and three years old respectively.

The reality of the physical limitation of RA was brought home to her during a cold snap shortly after her diagnosis.

She said: “I was in the car with the kids and my daughter was excited by the prospect of snow and asked me to help her make a snowman.

“With silent tears rolling down my cheeks, I suddenly realised that she may have well have asked me to climb Everest.

“I couldn’t imagine a time when I would have the energy or agility to build a snowman.”

Research has not established a clear link between joint pain and weather but many people with RA find their symptoms get worse when it is damp.

Jo said: “My survival strategy for the winter involves lots of early planning, online shopping and building downtime into your schedule.

“The kids still need to be outside at this time of year and rather than mention that I am having a bad day I will just suggest we do some
arts and crafts or my husband, Ewan, will take the kids out to burn off some energy.”

Aside from the physical restrictions, RA can also take a significant emotional toll and Jo can identify with the survey’s findings of a link between RA and depression.

Jo said: “I gave up my high powered city job to have the children and my experience with RA has prompted me to start training as a counselor.

“An RA diagnosis is devastating and while I welcomed the relief from the physical symptoms, I was shocked with how little emotional support was available.”

Jo turned to the National Rheumatoid Arthritis Society – using their “online forum almost every day for reassurance and support”.

NRSA boss Ailsa Bosworth added: “The survey brings into focus the many challenges that people with RA can face during the winter period and beyond.

“The joint damage in RA often begins early in the disease, so it is critical to treat as early as possible and maintain treatment to reduce symptoms and stop irreversible damage before it occurs.

“With the right management there is no reason for 2012 not to be a happy new year for people with RA.”

Read more: http://www.mirror.co.uk/news/health-news/2012/01/24/rheumatoid-arthritis-leaves-one-in-three-feeling-depressed-and-lonely-115875-23714394/#ixzz1kLKGvEpb”>


Arthritis Support Group NYC – January 25, 2012

Hi Friends,

Please join us on January 25, 2012 at 6.45 p.m.

Where? Cibo restaurant Midtown east

767 2nd Ave (Cnr E 41 st & 2nd).

It’s a casual get together where you can be with others who understand and have some fun :)


Gratitude

I received this email yesterday. While I would never disclose personal information I do want to share the feeling of how great it is when you make a difference in someone’s else’s life and months down the track they contact you to show their gratitude. People never forget how make them feel. Here is part of the mail….

“Hello- I hope that this finds you well. I emailed you a while back. Your response helped me through a tough spot. Your book, your struggle and your strength, are attempting to get me through another. After reading your book I wanted to say thank you for even responding to my email. I keep it still, and on days like today when I’m struggling to walk I read it.  Thanks for sharing your struggles and supporting others , like my self. I hope you are well.  You are truly an amazing person. Just wanted to say thanks.
M…..”
I responded with a personal reply. This email meant so much to me. :)

The Latest News on Biologics for Kids with RA in Australia

I do not support any particular drug company. However, the need for biologic medicines which are accessible quickly in Australia continues to be something which I will always be passionate about. The following is great news for children with RA in Australia.

This is from one of Australia’s leading paediatric rheumatologists, Dr Jeffrey Chaitow.

About the TGA approval and Dr Chaitow’s comment

  • Children in Australia living with systemic Juvenile Idiopathic Arthritis (sJIA), a rare and aggressive form of arthritis, now have access to an approved biologic treatment following the Therapeutics Goods Administration (TGA) approving Actemra® (tocilizumab) for the treatment of sJIA in patients two years of age and older. This approval for juvenile patients follows its current availability for adults with severe active Rheumatoid Arthritis (RA) on the Pharmaceutical Benefits Scheme (PBS).
  • Head of the Department of Rheumatology at The Children’s Hospital at Westmead, Sydney, Dr Jeffrey Chaitow, said the decision to approve Actemra® for children with this severe form of juvenile arthritis is very welcome.
  • Dr Chaitow said: “sJIA is a debilitating disease characterised by persistent fevers, swollen and painful joints which significantly impact on a child’s quality of life.  Many have difficulty walking and rely on their parents and carers for help with simple daily tasks. They may experience isolation and loss of self-esteem as their ability to play with friends, attend school and participate in sport is also impacted.”

New Treatment in Australia for kids with rheumatoid arthritis

I am hearing about a newly approved Roche drug for kids with arthritis. Stay tuned…….


Karen and Arthritis Support Group Nov 16


I have booked Cibo on Nov 16 at 6.45 p.m.

The address is 767 2nd Ave at E41st.
Richard Branson says “we don’t celebrate enough’ and I have to agree. So let’s celebrate the holidays, friendship and the end of 2011 and the beginning of 2012.
Have a great weekend.
Cheers
Karen

World Arthritis Day OCTOBER 12, 2011

The Arthritis Foundation is joining a global effort on October 12, World Arthritis Day, to increase awareness of the many forms of arthritis.  Policy makers on Capitol Hill will be reminded that “Arthritis is Unacceptable.” World Arthritis Day is part of a global initiative by the United Nations-endorsed Bone and Joint Decade. Arthritis is not an ‘old person’s disease.” There are 100 plus different forms of the illness and for some of us, depending on where you are in the world because lack of access to medications, it can mean chronic pain, debilitation, fatigue, depression and a loss of hope. It is my dream that the world will grow to understand the many forms of this disease better and that there will someday be a cure. I dedicate this post to my friend, my role model and a leader by example
Jeffrey Gottfurcht. The first man in the world to climb Mount Everest with RA. Wear blue today to show your support for World Arthritis Day.

Enemy Within now an ibook

Oooooh I am so excited. My book is now available on the ibookstore. Very cool.

http://itunes.apple.com/au/book/enemy-within/id450090274?mt=11


A Brave New World

In my book, ‘Enemy Within – A memoir of strength, determination and acceptance’ I write about 9/11. I called the chapter ‘A Brave New World.’ Ten years ago every New Yorker understood that the world had changed. We all had to be brave and courageous. Some faced the adversity without fear and made the ultimate sacrifice. We will never forget.

I went downtown to Tribeca for dinner with my girlfriend on Friday September 9,2011. V lives around the corner from the ‘World Trade Center’. In my book I  write about spending part of September 11 with V and with Char. While V stood outside her place , almost 10 years after 9/11, choppers circled the sky and beams of light made the almost full moon illuminate even more. The city’s energy was all around us. It felt like fear was in the air.  The atmosphere reminded us both that if we allow ourselves to feel the emotions of 9/11 that the pain is really just below the surface. I was struck by the deep sadness that I still felt.

Yes in many ways we are ‘A Brave New World’ and I am proud of the resilience of New Yorkers, but I also realized today 9/11/11 that we’ll never really be healed. I will never forget the pain.

Then I went to church to pay respect to our fallen heroes and I felt moved to take action again.  We all have to do what we can to make the world a better place. A world with hope, love, peace and understanding.  A world with optimism. A world where neighbors and communities look after each other just like we did after 9/11.

I promise to do my part every day to  make the world a kinder, happier place by reaching out to one person in need, or doing an act of kindness, or caring for nature, or writing a thank you card. My feeling is that if we all do this we truly can make a difference and that our world will be a better place.

Michael J Fox is my hero. Go to www.values.com

To buy my book copy and paste

http://www.amazon.com/Enemy-Within-strength-determination-acceptance/dp/1741108500


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