Angel on my Shoulder by Natalie Cole is the song that my sister in law and brother cried to at the lighting of the Xmas tree at the Rockefeller Center when she had finished chemo. Now the song is about hope to me. I have teamed up with Jeffrey Gottfurcht to help him make dreams of kids with RA come true. He found me on twitter and we are both working to public raise awareness. I feel like I have an angel on my shoulder these days who is also making my dreams come true despite my daily battles with this pain.

Thank you Jeff www.jgcaf.org
You are giving us all hope!

There’s a lot of blogging go on out there about RA. While I agree that it’s important to be positive I also understand, after being in this RA battle for 30 years, that the disease is defiant, stubborn and disheartening at times. I also believe that the disease has been a gift and that I am a better teacher of children with learning challenges because of it. So let’s be positive but keep it real

My next Karen and Arthritis Support (KAAS) group meeting is January 20 2010 in NYC. Venue t.b.a.
Till later
Have fun and show someone you care. Doing good makes you feel good.

Late venue change 11/18
We are now meeting at

Sinigual
640 3rd at 6 45

Flaring tonight but I always make time for this.

Hi Everyone,
Happy Holidays. It’s time to be thankful and be merry. I’d love to see as many friends/members on November 18 as possible. I believe there’s nearly 15 now. So I hope to see you on:
November 18 @
Cibo Restaurant @ 6 45 p.m.
2nd Ave between 42 nd and 41 st
New York
Men get arthritis too, so all are welcome!

Nov 13 (Reuters) – Adeona Pharmaceuticals Inc (AEN.A) said its experimental rheumatoid arthritis drug showed significant benefit compared with a dummy drug in a mid-stage study on full analysis, sending its shares up as much as 17 percent.

The company said data from the study, which was published in the journal Arthritis & Rheumatism, showed that the drug dnaJP1, provided 20 percent improvement at least once on day 112, 140 or 168 of treatment.

The drug was safe and well tolerated in the study. Adeona is looking for a partner to help develop and commercialize the drug.

Hi Everyone,
Happy Holidays. It’s time to be thankful and be merry. I’d love to see as many friends/members on November 18 as possible. I believe there’s nearly 15 now. So I hope to see you on:
November 18 @
Cibo Restaurant @ 6 45 p.m.
2nd Ave between 42 nd and 41 st
New York
Men get arthritis too, so all are welcome!

Hi Everyone,
The following is a quote from Reuters:
– 68 percent of women living with rheumatoid arthritis look for new pain relief therapies to help them cope
– Almost 60 percent of women in the U.S. living with rheumatoid arthritis find intimate relations painful
– Rheumatoid arthritis played a role in 25 percent of divorces amongst women with the disease
A new survey of U.S. women living with rheumatoid arthritis RA)published today reveals that RA has a clear emotional impact on people living with the disease, with loss of self-confidence seen in their sex lives, in the workplace, and in their social lives. Survey findings suggest that almost 60 percent of women living with RA in the U.S. feel less self confident in their sex-life and over a third consistently find intimate relations painful, or have even stopped altogether.
For the full article go to www.karenandarthritis.com, click Arthritis and RA in the News.
What I know for sure: All of us with RA can support one another and help when it’s not a ‘Good Day.’
K x

Over the years I’ve had many supportive parents at school helping with my dream to raise awareness about arthritis and to change the public perception of arthritis. For this to happen, authenticity of the pharmaceutical companies is key. No more actresses in ads trying to pretend they have arthritis. In September, with cautious optimism, a few of my girls from my Karen and Arthritis Support group (KAAS) attended a casting for a ‘pharma’ company. After many conversations about the importance of authenticity with me, those casting the commercial really listened and seem to be genuinely interested in RA awareness and the cause. This is a huge change and Abbott needs to be congratulated (so far) for this, as do those involved in casting the commercial.

Don’t forget the next Karen and Arthritis Support Meeting (KAAS):
November 18
Cibo Restaurant @ 6 45 p.m.
2nd Ave between 42 nd and 41 st
New York
Men get arthritis too, so all are welcome!

Yes my support group has a new name. I have been contacted by a few men and now realize that we can’t be exclusive. So we are now KAAS which is kind of how Australians shorten Karen.
Our next meeting is:
Wednesday November 18 2009
6.45 p.m.
Cibo Restaurant – 2nd Ave between 42nd and 41st in Manhattan NYC

Every time we meet I feel happy that we have each other. All up there are about 15 members and it’s growing.

Think happy thoughts and remember helping others makes you feel good.

K